| Text relay services in the UK |
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| 04-Mar-2012 @ 6:44 pm |
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I can cope reasonably well with phones by APD standards, but sometimes I do find it really hard, and telephone trees can cause me to give up before I've even spoken to a human. Not to mention that my memory is shot and I forget calls. I'm interested in trying a text relay service to see if it will help with some calls. Does anyone know of one I can use in the UK? I tried following this link, but it doesn't seem to get you far if you want a computer (rather than smartphone) service. I will be doing this on the laptop, I don't have a smartphone or textphone. |
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| 03-Aug-2011 @ 1:49 pm |
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mood:  curious
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Hello All! My name is Melissa, and I'm a para-educator for a special ed department in a public high school. I'm part way through my master's degree and teaching certificate, and for one of my classes I'm doing some research on what people think about including multimedia and technology in instruction for students with IEPs, FSPs, and 504 plans. I'd really appreciate any and all participation in my project.
If you are the PARENT or GUARDIAN of a child with an IEP, FSP, or 504 plan, please fill out my short, anonymous survey: http://www.surveymonkey.com/s/9GMNBFP
If you are a STUDENT or a FORMER STUDENT with an IEP, FSP, or 504 plan, please fill out my short, anonymous survey: http://www.surveymonkey.com/s/9BTKGJF
If you are a certificated TEACHER, please fill out my short, anonymous survey: http://www.surveymonkey.com/s/93NBY3D
Thank you so much for all your help! |
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| 20-Jul-2011 @ 8:57 pm |
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Hi, I am writing an article about traveling to other countries (especially for study abroad) with learning disabilities or ADD/ADHD. I do not have an LD or ADD so I would love to hear from anyone who has been to a foreign country or people who have come to the US. Do you use assistive technology that can be used in other countries? Do you have any tips or strategies for others with traveling or studying abroad? Are there differences about whether LDs are recognized or understood in different cultures? Thanks! |
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| 15-Nov-2010 @ 4:08 pm |
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Just a few thoughts after reading loads of entries in this community!
It seems that a lot of people have a trouble with talking fast? Is that a common thing with CAPD cause if it is that's another thing I can add to my ever growing list..I've always talked too fast and too loud and I'm always getting in trouble for one or the other!
Also, at university/school/college whatever it's common for students to be arranged in lines to sit down and do their work, I have always found if I'm at the end of the line I cannot hear anything that is being said but if I'm in the middle then I can get along much better. Anybody else have this? |
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| Newbie here |
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| 14-Nov-2010 @ 11:06 pm |
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So I stumbled across your community and after reading some posts it almost feels as though I'm reading about myself! I haven't been officially diagnosed or ever had a hearing test (apart from doing the one on the RNID site which told me I had normal hearing) but after relating so much to these posts I was wondering whether you could tell me if it seems like I have CAPD?
I suffered frequent ear infections as a child and I'm pretty sure my eardrum burst everytime. =/
Okay so I mainly have trouble hearing in noisy environments.
So in crowded places such as shops is a nightmare, I went shopping with my dad only yesterday and I couldn't understand a word he said to me most of the time.
I used to work in a shop at a weekend which would be quite noisy and apparently I used to lean towards customers trying to struggle to understand what they were asking me.
At university, we have this one lecture where everyone talks in it and I have to sit in the front row just so I can understand/hear whats going on. I also have trouble hearing my friends when people are having background conversations. If there's no background noise it's fine.
I can't hear people if we're in separate rooms, many times my mom or brother have shouted from a different room in the house and I've had to walk to them to understand what they're saying.
I apparently talk really loud?? My dad is constantly telling me to shut up and that "he's only here no need to shout" ¬.¬ but it sounds normal to me!
Last one, if people face away from me I haven't a snowballs chance in hell of understanding them at all.
I also suffer from random bouts of tinnitus/dizziness.
For all these problems I have with hearing things it is very unpleasant when things are TOO loud for me, and it seems things that are TOO loud for me are perfectly acceptable for others.
EDIT: Sorry I forgot, often have difficulty understanding what is said on the phone/xbox live microphone as well, which means asking for repeats over and over or just completely ignoring what is said!
Any ideas? I don't want to go to the doctor if I'm just being a hypochondriac but again, sometimes it's no fun when I just have to give up on trying to listen to what's going on and just watch. :(
EDIT 2: Sorry, another thing if I'm concentrating on something, usually reading, I don't hear what is said to me AT ALL. Is that normal? |
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| WOW! |
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| 12-Nov-2010 @ 9:26 am |
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mood:  jubilant
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My Hearing Aid Consultation appointment was yesterday.
I am BEYOND thrilled!!
During our little 20 minute demo at the hospital building, my husband noticed almost immediately he wasn't having to ask me to talk quieter. He said I was responding quicker, too (less latency he called it).
We went to a noisy place, and he was able to talk in a normal voice a few feet away and I was able to understand him perfectly. Not once did I have to ask him to repeat himself.
The real test however, was when my husband & I went out to dinner at a fairly noisy restaurant with a couple of friends. I sat with my back to the noise, so the hearing aids could do their thing, and I was able to understand EVERYONE! Not a single time did I have to ask someone to speak up or repeat themselves. And my husband reports I was able to talk at a normal volume the entire time. I don't remember the last time either of those things happened... I'm not sure they ever did.
Anyone who has an audiologist nearby (or even halfway nearby), who is willing to fit you with mild low-gain hearing aids should go do so immediately.
I'm still on my first day of a pair of long-term loaners, so we'll see how things proceed, but I'm very happy. I'm happy I can hear people more easily, my husband is happy he doesn't have to repeat himself so often, and he's thrilled I'm not constantly talking too loud!
I'm really looking forward to seeing how Thanksgiving goes. Normally by day's end I'm exhausted from trying to participate in conversations (and frequently towards the end, I just give up and sit there & watch).
She programmed the hearing aids as if I had a flat 20db hearing loss (the border of normal & mild hearing loss). The hearing aids are set to always be fully directional (only where I'm looking is getting amplified), and the open-fit means all the non-amplified sounds I'm still hearing as normal. It works quite well, and I'm VERY pleased.
My husband said that just even if all the hearing aids did for me was help me modulate the volume of my voice, he'd says they're worth purchasing! |
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| hearing aids for APD? |
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| 24-Sep-2010 @ 6:12 pm |
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mood: curious
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Has anyone used hearing aids to help their Auditory Processing?
I have an audiologist who is suggesting low-gain digital hearing aids with directional microphones & a noise-reduction program to help me hear better in noisy situations.
Before I go down this route, I wanted to see if anyone else had experience with this. |
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| *Finally* I got a diagnosis that feels right! |
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| 19-Nov-2009 @ 7:38 pm |
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I don't have ADHD after all - it was a misdiagnosis of my now-diagnosed mild Auditory Processing Disorder. It sure doesn't feel like it's just mil, but I have enough issues from it that I'd hate to think how difficult it would be if it was moderate or severe!
It feels good to be free of the ADHD label - it never felt really *right* to me. APD however does feel right.
For the curious, here are ( some of my test results: )
I have found good accomodations by myself, mostly the hard way. I still need to go pick up a PocketTalker or something to help me better understand my husband when we're out in noisy places (even Olive Garden is a struggle). But that's why we're both learning ASL. He's currently re-taking Beginning 1, and in January we're both going to take Beginning 2 together. |
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| Are they really that unaware of APD in this country? |
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| 13-Nov-2009 @ 5:13 pm |
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BBC article about dyslexia which actually seems to be about APD. Does anyone know what the co-morbidity of APD and dyslexia is? I don't have dyslexia, but while I've probably had APD from birth, I developed a visual processing disorder (Meares-Irlen Syndrome) which causes dyslexia-type symptoms, and which is seen in dyslexics, when I acquired ME/CFIDS at the age of 19.
The article is rather alarming in that it suggests that APD is completely unknown in this country. I didn't think it was quite that bad. |
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| auditory distractions... |
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| 28-Oct-2009 @ 11:27 am |
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File under: does-anybody-else-do-this?
This happened to me yet again this morning, so I was spurred to come on here and see if it happens to anyone else.
If I'm doing something and think to myself "I should go to kitchen/library/etc and get/look for (a specific item)". On my way there I overhear a snippet of a hallway conversation I can't tune out... and I while I remember and make it to my destination I can't remember what I wanted to go there for (this morning I instead remembered that snippet of conversation).
Also, has anyone else gone out and gotten custom earplugs? I'm thinking about getting some to help block out all the hallway conversation (& other background noise) at work that I can't tune out & ignore on my own. I know it's a bad idea to wear them all the time, so it would just be while working on complicated/difficult projects I really need good concentration for. |
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| Introduction |
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| 18-Oct-2009 @ 1:18 pm |
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Hi all,
I came across this community last night and immediately felt "at home". I've been working with sensory defensiveness for years. Some recent academic difficulties have led me to investigate CAPD as well. I have been to an audiologist, who just tested my basic hearing and said everything was in the normal range. I did have many ear infections as a child, supposedly lost a small percentage of hearing in one of my ears, but the hearing returned as I outgrew the ear infections.
( Read more ) |
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| getting diagnosed... |
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| 13-Oct-2009 @ 7:47 am |
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mood: curious
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I'm going to do a bit of traveling next month and go here and get some *real* Auditory Processing testing done. :)
I had some testing done last month, but that audiologist couldn't give me a definitive diagnosis (because all she tested me with was basically a screening tool & one other test).
I'm looking forward to the comprehensive testing this other place does, and even more looking forward to getting a diagnosis!
I've already been in communication with this new audiologist, and one of the comments she made has made me wonder if perhaps I never really had ADHD... my ADHD diagnosis was about as comprehensive and thorough as that original APD testing I had last month, which is to say, not very.
Anyone else here been originally misdiagnosed with ADD/ADHD, only to find out later it was really just APD all along? |
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| Can anyone help me with this? |
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| 29-Sep-2009 @ 5:55 pm |
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mood: hopeful
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The problem is that nowhere in this results report does it say "diagnosis of Auditory Processing Disorder"
Auditory Processing Evaluation Results:
SCAN-A (mean = Standard Score of 10; 2 Standard Deviations is a Standard Score of 4):
-Filtered Words Subtest: Standard Score 11; percentile ranking 63
-Auditory Figure-Ground Subtest: Standard Score of 2; percentile ranking of 1 [I flunked this one *miserably*]
-Competing Words Subtest: Standard Score 11; Percentile Ranking 63
-Competing Sentences Subtest: Standard Score 7; Percentile Ranking 16
Dichotic Sentence Identification Test: 100% in right ear; 93% in left ear. Scores within normal limits.
Pitch Pattern Sequence Test: 100% in right ear; 90% in left ear. Scores within normal limits.
Impressions: Test results indicate that ![[info]](http://l-stat.livejournal.com/img/userinfo.gif?v=92.2) rosebee has significant difficulty understanding speech when background noise is present, consistent with her primary complaint. She also scored more errors in the left ear than the right ear on many of the tests.
So.... do I have APD or not? I'm going to try and call the Audiologist, but she's only at the location in my town for one half-day a week.
Thanks in advance for any help! |
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| It's (semi)offiical... |
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| 25-Sep-2009 @ 12:03 pm |
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I had my APD (Auditory Processing Disorder) testing yesterday.
I don't recall everything they did, but it was very short - only about an hour and a half. They did a 4-part thing that was on a CD. First I had to repeat words, but the words had been passed through a filter, so they had some sounds removed. Then they gave me words in both my ears - different words at almost the same time. First I had to repeat back the right ear word and then the left ear word, and then vice versa.
Then my two ears heard two different near-simultaneous sentences. I had to ignore my left ear and repeat only what was heard in my right ear, then vice versa. Then was the really hard bit - I had to repeat words, but there was godawful background noise! Not just static, but background noise of multiple people talking and babbling. Nothing that was identifiable as actual other words, but lots and lots of babble. And while the babble was going on, I had to repeat back the words - first the right ear, and then the left.
I also had one where two different sentences were given in my left and right ears. I was given a list of the sentences, and by saying the number of the sentence I had to tell the audiologist which two sentences I was hearing.
And then I had one where there were high and low pitched tones, and I had to say the pattern I heard them in.
The audiologist is still writing the report, and will mail it to me when it's done. After all the tests, she went back to her office briefly (5 min) to do some scoring. When she came back she said I did rather well on almost everything... I did VERY poorly on the bit where I had to repeat words with all the background noise. Also my left ear doesn't work as well as my right. It's very common to see a much larger discrepancy than mine in children, but by about age 12 the two ears even out... but mine never quite evened out. She said it wasn't a big enough discrepancy to be abnormal, but it was a discrepacy.
Since most of my problems are not showing up at work, but in group/social situations she said an FM system that's meant for classroom student/teacher type use wouldn't be of much help. I asked if it would help at all for those times my husband & I are going out to dinner & I can't hear him... and she said what would help best is an inexpensive ($160) thing called a PockeTalker Ultra. A little bit bigger than a deck of cards has a plug for a long corded microphone and a plug for headphones/earbuds. Hubby & I are thinking aboug getting this.
She said I'd managed to already come up with a lot of good coping strategies. Headphones for the tv, moving away from noisy objects when someone's trying to talk to me, moving closer to the person trying to talk to me, turning off fans & other noisy things, switching to my good ear (my right ear works better) when I can't hear someone on the phone in my left ear, and other such things.
I'm looking forward to getting the official report! |
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| remembering names? |
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| 08-Sep-2009 @ 9:52 am |
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mood: curious
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Anyone else have trouble with this?
Two coworkers I've known for 4.5 years I *constantly* mix up their names. I'll call P, K, and when I see K, I'll call him P. :/ Same with M & B. I mix their names up all the time too.
And anyone I pass in the hall, I usually just say "Hi" and leave off the name, because by the time I can match a name in my head to the face I see in the hall the person's passed me. It takes a concerted effort for me to be able to say "Hi so-and-so", and I have to see them far enough down the hall to give me time to match name to face.
Is this just me and my very visual self, or an APD thing?
Family I have no trouble with, long-time friends I'm good with. But friends I haven't seen in years I'll easily remember their face, but can't put a name to it. Same if I see a current coworker outside of work, I'll know them, but recalling a name is tricky. |
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| What it's like to have my hearing system... |
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| 03-Sep-2009 @ 10:29 am |
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I joined the OldAPDs yahoo group, and posted this there. One of the audiologists that lurks there, asked if I'd be willing to let her post it (or part of it) as a quote on a "Adult APD" page she's working on creating. She also said "I wouldn't want to put it up until you have finished your testing, because I would want to make sure that such a first-hand account was by a person who would test out with APD on standardized tests." I haven't had the testing yet (scheduled for 3 weeks from today), but as I have all the symptoms, and some of the 'common history' (ADHD & history of constant childhood ear infections), I'm pretty sure I have APD.
I thought I'd also post this here in case any of you can relate to my struggles, and to see if any of you have any ingenious coping methods that I might be able to incorporate into my life.
( my hearing system at home, work, & other places )
ETA: I've had two hearing tests, both said my hearing was 'normal'. The second opinion hearing test did a test the first one didn't... words into my ear (like the first), but then again with background static. The words were 5db louder than the static. She said with the static I made few enough errors that I technically 'passed', but she also said that if it'd been a timed test I would've flunked it.
I still find it odd to have 'normal' hearing, but have such difficulties in non-quiet environments. |
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| New |
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| 14-Aug-2009 @ 1:19 am |
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mood: curious
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Hi,
I am new. I am 27 years old and for the last few years felt like my hearing has been getting worse and worse. I find it hard to understand people when they are speaking to me. It gets worse in situations with background noise. Sometimes I hear words from my partner that make no sense and I repeat what I've heard and we sometimes laugh because it's crazy what I think I've heard him say. but it's also quite frustrating.
I've always done okay in school but did terrible at math and suspected an LD. I just could never get it.
At night I find myself to be hypersensitive to noise and have used ear plugs on and off for a long time when I can't sleep because of some noise that might not bother the average person. I tend to hear a watch ticking or the low sounds of my neighbors TV. I have a hard time tuning stuff out, which is another reason why I was angry about the conclusion my doctor came to after my hearing test today.
I finally got a hearing test (after putting it off for awhile) and it turns out that my hearing is perfectly fine. The ENT doctor told me I must be getting distracted or have trouble focusing. This really upset me because I really don't think that's the issue. I find myself sometimes trying to read lips and to face the speaker.
I didn't know anything about CAPD until I decided to google around about listening problems. The symptoms sound like me. I did have some head trauma back in middle school and that's when I really started having problems in math. I didn't really notice the voices sounding weird until a few years ago..when my boyfriend mentioned that sometimes I just nodded and smiled at what he was saying because I wasn't actually understanding/hearing him.
Any advice on what to do next?
Thanks! |
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| Right ear "is best for hearing" |
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| 24-Jun-2009 @ 12:42 pm |
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Article here. I've noticed that I hear better on my right, though I had though it was due to getting occasional tinnitus in my left ear. I think this is more likely the correct solution. What does everyone else find? |
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| I hate automated telephone systems! |
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| 04-Jun-2009 @ 10:32 am |
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I am increasingly unable to handle ringing up places where you have to go through automated telephone systems. The last one I had to ring took 8 minutes before I got to a human, and I was ready to collapse by that point. I just can't understand them, so then I hit the wrong number and have to hang up and start again. Does anyone know if there's some sort of shortcut to bypass them and get to a human? I'm in the UK. |
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| New community for visual stress, Meares-Irlen Syndrome, dyslexia and so on |
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| 21-Mar-2009 @ 11:18 am |
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codeman38 and I have just created ![[info]](http://l-stat.livejournal.com/img/community.gif?v=92.2) visual_stress, for anyone who experiences symptoms of visual stress. It's also known as visual processing disorder, Meares-Irlen Syndrome, Irlen Syndrome, or Scotopic Sensitivity Syndrome, and it takes the form of unpleasant visual distortions or eyestrain when reading, sometimes with headaches or migraine as well. It's commonly treated with colour, for instance in the form of acetate overlays for paper or tinted spectacles. You can read more about it here. There's a strong connection with dyslexia, and some people with processing problems have co-existing auditory processing disorder or other neurological issues.
You don't have to be diagnosed with visual stress to join, just to have difficulties in this general area. People with ME/CFIDS, migraine, MS, epilepsy, autism spectrum disorders or ADD/ADHD, for example, often experience visual problems of this nature.
(And hopefully we can redirect all posts on this topic to visual_stress, if any more turn up here. Sorry there's been all this hoo-hah on the subject lately.) |
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